Well that was 2020

I haven't written a blog since all the chaos began in March. I started writing quite a few in my head, and even started jotting things down once or twice, but none of them made it to here. There was an overload of information out there, so much to read, so much to take in... Continue Reading →

An open letter to the non-believers:

I NEED you to know that I am NOT lazy. If you had ANY idea how much I LIKE exercise and miss that feeling of adrenaline coursing through my body as I play my favourite sport. The sheer enjoyment as I walk that extra mile along the beach or through the woods. The happy exhaustion... Continue Reading →


We went off on our first family holiday abroad last week. We went to the Netherlands (or never never land as my kids christened it!) It was so nice to get away and have some proper family time without DIY or lawns to mow, laundry to do. From an ME perspective I did far too... Continue Reading →

Wobble of Self Worth

I'm having a wobble of Self worth again... Having been fighting a bug all week, hang on, actually only since Wednesday, though it feels so much longer. Getting ill on top of my M.E. always sends me into a spiral of self doubt, and leaves me fed up not only about being unwell but about... Continue Reading →

Pivotal Point

This time last year I found myself trying to do everything I wanted to do rather than pacing and taking care of myself. I ignored red flag* warning signs, pushed on and ended up crashing and burning for the first half of this year. Now it is November and again I find myself doing what... Continue Reading →


I appear to be having what I am going to call an ME flare. Which I would say is worse than a crash but not as bad as a relapse. I did far too much through December. I ignored the odd symptom that reared it's head and I pushed through. I did this because I... Continue Reading →

ME Awareness 2017

It is that time of year again, ME Awareness week. In previous years I have been a princess, a superhero, "gone blue", and donated various handmade items to auctions and raffles. This year I am not doing any specific fundraising, apart from my on going "Kickscoot the coast". This year I would like to talk... Continue Reading →


I often find myself writing these posts when I'm not feeling so good so I'm going to begin by talking about how good the last 2 months have been. I've just had the most active summer I have had in years. When the kids were off school we went out everyday on their bikes, to... Continue Reading →

M.E. Awareness Month

May is ME Awareness month, more specifically May 12th is ME Awareness day. This is the time when many ME sufferers do a giant push of fundraising and awareness building. This year there are many fundraising ideas out there, but I couldn't decide what to do. Shall I be a princess? #teamprincess Should I shave... Continue Reading →


Anxiety. A year ago I didn't really know what anxiety was. Now I am all too aware. It is getting worse and I don't know how to stop it. I feel I am turning into a hermit. It is not there all the time, but I feel it every time I have to leave the... Continue Reading →

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